On Wednesday 6 June, Sir David Amess attended the Brittle Bone Society’s first Parliamentary Reception which was held in celebration of their 50th anniversary.

The organisation was set up to address the needs of people born with the rare bone disease Osteogenesis Imperfecta (OI) in the UK and Republic of Ireland.

Formed fifty years ago, they provide support, signposting, information and financial assistance for essential equipment such as wheelchairs. Recently the society has embarked on fudging cutting-edge research as a member of the Association of Medical Research Charities (AMRC). The organisation has also been building networks by including friends in the Hypophosphatasia (HPP) and X-Linked Hypophosphatemia (XLH) communities as these rare conditions are also handled by the same healthcare professionals who care for people with OI.

The reception held in Parliament on Wednesday involved the presentation of Achievement Awards centred around multidisciplinary and continuing care provided at a number of NHS Trusts.

Sir David was delighted to be present at the event in order to show his support for the Brittle Bone Society and the work they do.