Local MP Sir David Amess MP has committed to support the charity Together for Short Lives’ call to provide better support for children and young people who need palliative care and their families.
The charity, which speaks out for the 49,000 children and young people in the UK who are expected to have short lives, held a Westminster reception on Tuesday 7th February to highlight the devastating impact that life-limiting and life-threatening conditions can have on children and their families. Sir David and other MPs heard about the action that ‘Together for Short Lives’ would like the Chancellor of the Exchequer to take to help these vulnerable families when he delivers his Budget on 8th March.
Children with life-limiting conditions require a wide range of professionals working together across different health and care services to support them. Unfortunately, there is a postcode lottery of support for children and their families as many cannot access the care that they need. This is because it is not available in their area or there are not enough professionals with the right skills and experience to care for them.
The MP for Southend West said:
“It was evident at the reception that there is much more to do to help families overcome the serious challenges they face on a day to day basis. I support the charity's call to make the mobility component of the Disability Living Allowance available to children under three who are dependent on heavy and bulky life support equipment. Currently this benefit is only available to children aged three or over. I look forward to working with Together for Short Lives in Parliament to support children with life-limiting and life-threatening conditions and their families.”